Privacy policy

1. Who is responsible

Charles Bailly, private individual, Switzerland.

Contact for any question about your data: contact@parkinsontracker.ch.

2. What the app does, and what it does not do

Parkinson Tracker is a personal journal. It lets you note your days, read them back and prepare a report for your appointment.

It does not diagnose, it makes no recommendations and it does not replace a doctor’s advice. It does not control a pump or a stimulator. The comparisons it shows are descriptive: they do not prove cause and effect.

3. The data you enter

Depending on the features you use:

• your states (Good, Slow, Stuck, Dyskinesia), fatigue and their times;
• your treatments, their schedules and the doses you log;
• the sleep and activity you log yourself;
• if you use them: your pump, its events and boosts already taken, deep brain stimulation and its changes;
• the daily check-in, with an optional note;
• “To Tell My Neurologist” and “What Went Well”, with the sentences you write there;
• appointments, reminders and your preferences;
• an optional profile, for example the first name you choose to show.

This information concerns your health: it is sensitive data, even when you enter it yourself. It is used only for the app’s features. It is never sold or used for advertising.

4. Where it is stored

On your device. The journal is stored in files protected by iOS and iPadOS.

In your private iCloud, if you turn it on. In More, “Sync with iCloud” is off at first. Once turned on, the journal is copied to the private database of your iCloud account, so you can find it on your iPhone and iPad. Journal values are stored there in encrypted fields. Apple provides this service under the terms of your iCloud account.

The publisher runs no server that receives journals, and never receives your journal automatically.

The widget shows your latest state. Tapping a state opens the app, which records it and lets you undo it. The widget itself writes nothing. On a locked screen, its information is hidden.

The Apple Watch, if you use one, receives from the iPhone what it needs for its display, for example the declared boost dose and whether a pump is used. In this version, nothing is entered on the watch. A “Delete Everything” is passed on to it too.

Backups of your device follow your Apple settings. Deleting in the app does not immediately remove backups kept elsewhere.

5. Apple Health, read only

Access is optional and goes through the iOS permission. If you allow it, the app reads your steps, your sleep and your workouts. It writes nothing to Apple Health and does not access health records.

The data read stays on the device, separate from your entries, and Parkinson Tracker does not send it to iCloud. You can withdraw the permission at any time in the Apple Health settings. The app still works without it.

6. How long it is kept

• Your entries, profile, treatments and appointments: until you delete them. Nothing is deleted automatically because of its age.
• Copies read from Apple Health: 180 days, then the app removes them the next time it opens. The original data stays in Apple Health.
• A copy set aside on a device, after everything was deleted from another one: 30 days, then the app deletes it.
• Technical deletion records: kept so that an old copy cannot bring back a deleted entry. They do not contain the content of the entry.

7. Deleting an entry, or deleting everything

You can delete an entry in the Journal, or delete everything in More, “Delete All My Data”. With iCloud, the deletion reaches your other devices when they sync.

With iCloud, “Delete Everything” first erases your private iCloud, then the device. If the deletion does not go through in iCloud, for example without a connection, nothing is deleted and the app tells you: you can try again. Another device that stayed offline may keep an old copy for a while: when it learns of the deletion, it sets that copy aside, without putting it back in the journal or sending it to iCloud again, and deletes it after 30 days. A small technical marker, with no medical content, stays in iCloud to prevent this.

Update all your devices before deleting. A PDF report or export you have already sent to someone cannot be recalled by the app.

8. The PDF report and the export

The PDF report and the JSON export are created on your device. They leave it only if you share them yourself, with the recipient you choose, who may then keep their own copy. The publisher is never a recipient automatically.

9. Reminders

Reminders are local notifications, scheduled on your device after you agree. By default, a dose reminder shows neither the medication name nor the dose: you can show them in Treatment. A break from reminders (More, “Take a Break”) applies only to the device where you start it.

A reminder is not medical advice. It never says that a dose was missed, and never advises catching up on or doubling a dose.

10. If you write to us

If you write to contact@parkinsontracker.ch, the publisher receives your email address and whatever you choose to send. This information is used only to reply. You can ask at any time for this correspondence to be deleted.

Do not send your journal, a report or a screenshot with health information. The publisher has no access to your iCloud: he cannot look at your journal, even to help you.

11. This website

This website is hosted in Switzerland by Infomaniak. It has no form, account, cookies, audience measurement or ads, and it loads nothing from other websites. The host processes the technical information needed to serve and protect the pages, for example the IP address in its access logs.

12. Your rights

In the app, you can view, correct, export and delete your data, withdraw your permissions, and delete everything.

This policy is written with regard to the Swiss Federal Act on Data Protection (FADP). You can ask the publisher, at the address above, for access to the information he holds about you (in practice, your emails), and for its correction or deletion.

You can also contact the data protection authority: in Switzerland, the Federal Data Protection and Information Commissioner (FDPIC); in another country, the competent authority there.

13. Changes

If the app or this website change the way data is processed, this page will be updated beforehand, and its date will change.